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The inaugural 2025 Cholestatic Liver Disease Summit brought together multiple liver disease communities for a dynamic three-day event, including a Scientific Meeting, Research Roundtable, and Patient & Family Conference.
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Bringing together stakeholders from Alagille Syndrome, Progressive Familial Intrahepatic Cholestasis, and Biliary Atresia—along with representation from PSC and other cholestatic liver disease communities—the Summit created a unique opportunity to bridge knowledge gaps, foster scientific collaboration, strengthen patient and family connections, and inspire High Hopes for the future of cholestatic liver disease care.​
Held in Aurora, Colorado at the Hyatt Regency Aurora-Denver Conference Center in partnership with Children’s Hospital Colorado, the Summit built on the institution’s extensive history in the research and treatment of Alagille Syndrome, PFIC, BA, PSC, and other cholestatic liver diseases.
By bringing together these communities, the Summit advanced both individual disease understanding and cross-disease collaboration—highlighting shared challenges and opportunities to improve outcomes across the cholestatic liver disease spectrum.
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One of the key outcomes of the Summit was the development of the Findings from the 2025 Cholestatic Liver Disease Summit Research Roundtable Meetings White Paper, which captures participant-reported insights and identifies priorities for future research, care, and collaboration.
👉 The full White Paper is available for download in the callout box on this page.
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We are grateful to the scientists, researchers, clinicians, industry partners, patients, and families who participated and contributed to the success of this inaugural event.
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Together, we continue to hold High Hopes for Cholestatic Liver Disease families.
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Alagille Syndrome Alliance
The Alagille Syndrome Alliance (ALGSA) is the leading 501c3 patient advocacy organization in the world serving families affected by Alagille Syndrome, a rare cholestatic liver disease and one of over 7,000 rare diseases in the world.
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PFIC Advocacy & Resource Network, Inc.
PFIC Network was founded by PFIC families & providing direct support and disease education to patients is at the heart of our organization.
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BARE, Inc.
BARE was created to help solve some of the deficiencies and frustrations that currently exist in the Biliary Atresia community. We believe creating an organization dedicated solely to Biliary Atresia, will help push for progress in finding a cause, treatment, and one day, a cure.
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Children’s Hospital Colorado
Children's Hospital Colorado is one of the top children's hospitals in the nation, helping kids across Colorado and the west and serves as a center of expertise across cholestatic liver disease.
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