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About Us
Alagille Syndrome Alliance (ALGSA)
The Alagille Syndrome Alliance (ALGSA) is the leading 501c3 patient advocacy organization in the world serving families affected by Alagille Syndrome, a rare cholestatic liver disease and one of over 7,000 rare diseases in the world.
Biliary Atresia Research and Education (BARE)
BARE was created to help solve some of the deficiencies and frustrations that currently exist in the Biliary Atresia community. We believe creating an organization dedicated solely to Biliary Atresia, will help push for progress in finding a cause, treatment, and one day, a cure.
PFIC Advocacy & Resource Network, Inc.
PFIC Network was founded by PFIC families & providing direct support and disease education to patients is at the heart of our organization.
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