Cholestatic Liver Disease Summit

Saturday, June 28, 2025

All agendas are tentative. Times, sessions, and speakers are subject to change.

CLD Family Conference

The Cholestatic Liver Disease Summit Family Conference provides presentations, panel discussions, expert talks, and fellowship time for Alagille Syndrome, PFIC, Biliary Atresia, and other cholestatic liver disease families. Sessions are appropriate for all stakeholder groups including patients, caregivers, clinicians, researchers, and industry.

**All sessions appropriate for all disease states unless otherwise specified.**

7:00am - 8:00am BREAKFAST

8:00am - 8:05am Welcome and Introductions

8:05am - 8:15am General Session: Nutrition

Patient & family testimonies

8:15am - 9:00am General Session: Nutrition - Real World Impact on Families

Panel: Kelly Klaczkiewicz, RD, Dr. Laura Bull, Dr. Ryan Fisher; Moderator: Stephanie Mullett

9:00am - 9:10am General Session: Mental Health

Patient & family testimonies

9:10am - 10:00am General Session: Mental Health in Cholestatic Liver Disease

Panelist: Caitlin Shneider, MS, Emily Vincent, Dr. Ruben Quiros; Moderator: Jen Lau

10:00am - 10:45am Breakout Sessions:

Alagille Syndrome - Alagille Syndrome & Nutrition Concerns

Alagille Syndrome - TBD

Biliary Atresia - Caregiver Support & Mental Health in the Diagnosis of Biliary Atresia

Facilitator: Dr. Emily Perito

PFIC - Nutrition Interventions for the Real World

Facilitator: Dr. Laura Bull

PFIC - Mental Health: Hot Topics through the lifespan

Facilitator: Caitlin Shneider, MS

10:45am - 11:00am BREAK

11:00am - 12:30pm Teen/Young Adult/Sibling Panel

Moderators to be announced

12:30pm - 1:15pm LUNCH and Keynote Address

Speaker: Dr. Ron Sokol

1:15pm - 1:25pm General Session: Transition/Transfer of Care

Patient & family testimonies

1:25pm - 2:15pm General Session: Transition/Transfer of Care

Panelists: Dr. Nitika Gupta, Dr. Deirdre Kelly, Dr. Jen Vittorio; Moderator: Dr. Shika S. Sundaram

2:15pm - 3:00pm Breakout Sessions:

Alagille Syndrome - Musculoskeletal Involvement in ALGS

Facilitators: Dr. Kathy Loomes, Dr. Julia Boster, Karsten Baumgaertal, Ph.D

Alagille Syndrome - Alagille Syndrome - Transition of Care & Thinking Ahead

Biliary Atresia - Putting Your Child in the Drivers Seat of Their Own Health

Facilitators: Melissa Semp, Kelly Hammes, CO Coordinator

PFIC - Peer-to-Peer Adults

Facilitator: Dr. Richard Thompson

PFIC - Genetics of PFIC

Facilitators: Dr. Chunyue Yin , Dr. Henkjan Verkade, Dr. Laura Bull

3:00pm - 3:10pm General Session: Transplant

Patient & family testimonies

3:10pm - 4:10pm General Session: Transplant - Ask the Expert

Panelists: Dr. Kathy Loomes, Anna Borgeman PharmD, Dr. Megan Adams, Dr. Emily Perito; Moderator: Dr. Amy Feldman

4:10pm - 4:30pm BREAK

4:30pm - 5:15pm Breakout Sessions:

Alagille Syndrome - Transplant Life

Facilitators: Dr. Kathy Loomes, TBD

Alagille Syndrome - ALGS Genetics Questions

Facilitators: Dr. Nancy Spinner, Melissa Gilbert

Biliary Atresia - Living Donation: The Future of BA

Facilitators: Dr. Amy Feldman, Dr. Megan Adams

Perspective Living Donor

Speaker: Trevor Hill

PFIC - Post Transplant Life-Everyday Experiences

Facilitators: Dr. Jim Squires, Dr. Emily Perito

PFIC - Managing PFIC: Pre-Transplant Treatment Pathways

Facilitators: Dr. Aki Asai, Dr. Ryan Fischer, Dr. Paula Hertel

5:15pm DISMISS until High Hopes Gala Celebration Dinner

High Hopes Dinner and Gala Celebration

The Cholestatic Liver Disease Summit High Hopes Gala Celebration Dinner will include dinner, dancing, and a raffle event. This exciting celebration event is appropriate for all ages and meant for all stakeholders to attend.

The "Home to Hope Raffle" will be held at the "High Hopes Dinner and Gala." We ask that attendees bring something for the raffle that represents your hometown, heritage, or culture. This can be one item or a basket of items, and we have no set guidelines on value. Typically items range from $10-$100. You will receive raffle tickets in your registration packet, and you can purchase additional tickets throughout the weekend to win one-of-a-kind items! Get creative! We have seen sports and entertainment memorabilia, non-liquid food items, accessories, and so much more!

High Hopes Dinner and Gala

7:00pm - 10:00pm