Cholestatic Liver Disease Summit

Saturday, June 28, 2025

All agendas are tentative. Times, sessions, and speakers are subject to change.

CLD Family Conference

The Cholestatic Liver Disease Summit Family Conference provides presentations, panel discussions, expert talks, and fellowship time for Alagille Syndrome, PFIC, Biliary Atresia, and other cholestatic liver disease families. Sessions are appropriate for all stakeholder groups including patients, caregivers, clinicians, researchers, and industry.

**All sessions appropriate for all disease states unless otherwise specified.**

7:00am - 8:00am BREAKFAST (Aurora I & II)

8:00am - 8:05am Welcome and Introductions (Aurora I & II)

8:05am - 8:15am General Session: Nutrition (Aurora I & II)

Patient & family testimonies

8:15am - 9:00am General Session: Nutrition - Real World Impact on Families (Aurora I & II)

Panelists: Kelly Klaczkiewicz, RD, Dr. Laura Bull, Dr. Ryan Fisher; Moderator: Stephanie Mullett

9:00am - 9:10am General Session: Mental Health (Aurora I & II)

Patient & family testimonies

9:10am - 10:00am General Session: Mental Health in Cholestatic Liver Disease (Aurora I & II)

Panelist: Caitlin Shneider, MS, Emily Vincent, Dr. Ruben Quiros; Moderator: Jen Lau

10:05am - 10:50am Breakout Sessions - room locations below. *You can attend any breakout session that interests you regardless of disease state.

Alagille Syndrome - Ask Us Anything: ALGSA Programs, Research, and How We're Helping

Facilitators: ALGSA Board & Staff (Conference Room VII)

PFIC - Nutrition Interventions for the Real World

Facilitator: Dr. Laura Bull (Conference Room I)

PFIC - Mental Health: Hot Topics through the lifespan

Facilitator: Caitlin Shneider, MS (Conference Room V)

Biliary Atresia - Caregiver Support & Mental Health in the Diagnosis of Biliary Atresia

Facilitator: Dr. Emily Perito (Conference Room II)

10:50am - 11:00am BREAK

11:00am - 12:30pm Teen/Young Adult/Sibling Panel (Aurora I & II)

Moderator: Amanda Griffith-Atkins, MS, LMFT

12:30pm - 1:15pm LUNCH and Keynote Address (Aurora I & II)

Keynote Address: Dr. Ron Sokol, Children's Hospital Colorado

1:15pm - 1:25pm General Session: Transition/Transfer of Care (Aurora I & II)

Patient & family testimonies

1:25pm - 2:15pm General Session: Transition/Transfer of Care (Aurora I & II)

Beyond the Handoff: Building Stronger Transitions from Pediatric to Adult Care

Panelists: Dr. Nitika Gupta, Dr. Jen Vittorio, Melissa Semp, APRN-NP, CCTN;

Moderator: Dr. Shika S. Sundaram

2:20pm - 3:05pm Breakout Sessions - room locations below. *You an attend any breakout session that interests you regardless of disease state.

Alagille Syndrome - Musculoskeletal Involvement in ALGS

Facilitators: Dr. Kathy Loomes, Dr. Julia Boster, Karsten Baumgaertal, Ph.D

(Conference Room VII)

Alagille Syndrome - Transition of Care & Thinking Ahead for Cholestatic Liver Disease Patients

Facilitators: Dr. Shikha Sundaram, Dr. Nikita Gupta, Dr. Jen Vittorio

(Conference Room VIII)

PFIC - Genetics Overview: For families & Adults

Facilitator: Dr. Chunyue Yin, Dr. Henkjan Verkade, Dr. Richard Thompson

(Conference Room I)

Biliary Atresia - Putting Your Child in the Drivers Seat of Their Own Health

Facilitators: Melissa Semp, APRN-NP, CCTN, Kelly Hames, RN, CPN, Laura Pratscher, RN/BSN (Conference Room II)

3:10pm - 3:20pm General Session: Transplant (Aurora I & II)

Patient & family testimonies

3:20pm - 4:20pm General Session: Transplant - Ask the Expert (Aurora I & II)

Panelists: Dr. Kathy Loomes, Anna Borgeman PharmD, Dr. Megan Adams, Dr. Emily Perito; Moderator: Dr. Amy Feldman

4:20pm - 4:30pm BREAK

4:30pm - 5:15pm Breakout Sessions - room locations below. You can attend any breakout session that interests you regardless of disease state.

All Disease States - Post Transplant Life - Everyday Experiences

Facilitators: Dr. Kathy Loomes, Dr. Jim Squires, Dr. Emily Perito (Conference Room I)

Alagille Syndrome - Ask the Experts: Answers to the ALGS Questions That Keep You Up at Night

Facilitators: Roberta Smith, Cher Bork (Conference Room VII)

PFIC - Managing PFIC: Pre-Transplant Treatment Pathways

Facilitators: Dr. Aki Asai, Dr. Ryan Fischer, Dr. Paula Hertel

(Conference Room V)

Biliary Atresia - Living Donation: The Future of BA

Facilitators: Dr. Amy Feldman, Dr. Megan Adams

Perspective Living Donor

Speaker: Trevor Hill

(Conference Room II)

5:15pm DISMISS until High Hopes Gala Celebration Dinner

High Hopes Dinner and Gala Celebration

The Cholestatic Liver Disease Summit High Hopes Gala Celebration Dinner will include dinner, dancing, and a raffle event. This exciting celebration event is appropriate for all ages and meant for all stakeholders to attend.

The "Home to Hope Raffle" will be held at the "High Hopes Dinner and Gala." We ask that attendees bring something for the raffle that represents your hometown, heritage, or culture. This can be one item or a basket of items, and we have no set guidelines on value. Typically items range from $10-$100. You will receive raffle tickets in your registration packet, and you can purchase additional tickets throughout the weekend to win one-of-a-kind items! Get creative! We have seen sports and entertainment memorabilia, non-liquid food items, accessories, and so much more!

7:00pm - 10:00pm High Hopes Dinner and Gala (Aurora I & II)